tag:blogger.com,1999:blog-6085645098242150009.post3646198550554110980..comments2011-08-03T12:29:16.890-07:00Comments on Moon Face: Fall/Winter UpdateBonnie Griffithhttp://www.blogger.com/profile/03103836851434830779noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-6085645098242150009.post-38270692668519688492010-01-12T10:10:47.236-08:002010-01-12T10:10:47.236-08:00Hi!
I found your blog through Ragamuffin's bl...Hi!<br /><br />I found your blog through Ragamuffin's blog. I have Crohn's and IC as well, although my IC has been pretty much controlled for the last few years. I am able to control it with rounds of bladder infusions mainly, and now I watch my diet and avoid spicy/acidic things (which I limit regardless due to the Crohn's). If there's one thing worse than having a Crohn's flare, it's surely having an IC flare (b/c you just can't, as you know, for one second, forget about it...). <br /><br />I was diagnosed in college as well (I'm almost 28 now), and visited three urologists/had tests before a proper diagnosis was made (and this was in Manhattan!).<br /><br />Now I get flare-ups perhaps once a month or so, but they usually dissapate in 3 days approx. All my best!!! (And you inspired me to perhaps blog about it...there's so little known about IC.)Kathrynhttps://www.blogger.com/profile/10746789901825076957noreply@blogger.comtag:blogger.com,1999:blog-6085645098242150009.post-16486052958294558532009-11-28T12:26:03.135-08:002009-11-28T12:26:03.135-08:00That's exactly it though! I would experience h...That's exactly it though! I would experience horrible symptoms for a couple of weeks at a time, and then it would just disappear like nothing was ever wrong in the first place. And then it would come back...and repeat the process over and over again.<br /><br />I hope you're able to see a urologist soon. I know this is NOT fun at all. Be prepared for a painful scope. They give you some numbing gel, and it only lasts for about a minute, but I just know I hate anything going up there. I'm all right with needles anywhere, but not anything like a catheter.Bonnie Griffithhttps://www.blogger.com/profile/03103836851434830779noreply@blogger.comtag:blogger.com,1999:blog-6085645098242150009.post-63547557386244077452009-11-28T08:14:52.944-08:002009-11-28T08:14:52.944-08:00hey -- i can't tell you how glad i am that you...hey -- i can't tell you how glad i am that you posted this. the symptoms you've been having are EXACTLY what i've been going through (useless antibiotics/AZO from lazy diagnoses and all). the only difference is that it's only been happening to me for two weeks; the urologist is my next step.<br /><br />i'm really sorry you were going through this for so long before you were given an accurate diagnosis, and i hope that you're able to keep insurance coverage... because apparently the generic for Elmiron is under patent restriction until 2013.<br /><br />take care. i would love to know how you're progressing.Ragamuffin, PhDhttps://www.blogger.com/profile/10561769322524106600noreply@blogger.com